Resources

Below are links to associations that provide a wealth of information for those with spinal cord injuries as well as a few additional resources. Please feel free to ask me any questions and make suggestions. I love hearing from readers!

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W.M. Keck Center for Collaborative Neuroscience ~ Offering HOPE!

Every 41 minutes another person sustains a spinal cord injury.  The mission of the W. M. Keck Center for Collaborative Neuroscience, located at Rutgers University, is the development of effective treatments for acute and chronic spinal cord injuries and to move these discoveries from the lab to human lives as rapidly as possible. Headed by Dr. Wise Young, money is needed to begin clinical trials in the U.S. That price tag is $14 million and must come from private donations. Since there are misconceptions about stem cell research and umbilical cord use, Dr. Young needs to raise money from private citizens. He began a campaign titled Just a Dollar, asking for each person to donate a dollar a day so those with spinal cord injuries can be cured. One dollar a day so those in wheelchairs may walk again. Those interested in donating may click on the below link.

https://secure.entango.com/donate/z7amHUbTiNZ

JustADollarPlease.org is the fundraising arm of SCINetUSA.  One of the Moms involved said, “If we can’t find a millionaire, we will ask a million people for a dollar.” And so JustADollarPlease.org was born. Together with Dr. Wise Young and other scientists and volunteers, progress is being made in the lab and in fundraising efforts.

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Those looking for a valuable resource regarding spinal cord injuries should visit Spinalpedia.com. It’s an outstanding web site for those who suffer from spinal cord injuries or paralysis, as well as family members, friends and caretakers. The site is a community of those working together to empower each other to adapt to life with paralysis. I wish this type of information was available following my injury…it would have helped in so many ways. There are videos, blogs and a whole lot more. Click on the link below or visit the Facebook page or follow them on Twitter @SPINALpedia.

http://www.spinalpedia.com

The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.

http://www.christopherreeve.org

Additional associations that may provide help: 

 

International Essential Tremor Foundation:

http://www.essentialtremor.org/SiteResources/Data/Templates/t1.asp?docid=782&DocName=Home

http://www.torticollis.org/

Searching for a doctor or other medical professional? Be sure to ask friends and family as well as visit the web site below. Enter the doctor’s name and location and you will be able to read reviews from patients pertaining to the doctor, office staff, etc., which may assist in determining if this doctor is a good fit. Makes for interesting reading. (I have found this to be the most comprehensive physician review site on the internet). 

www.vitals.com

JAN provides free consulting services for individuals with physical or intellectual limitations that affect employment. Services include one-on-one consultation about job accommodation ideas, requesting and negotiating accommodations, and rights under the Americans with Disabilities Act (ADA) and related laws. Although JAN does not help individuals find employment, JAN does provide information for job seekers.

http://askjan.org/

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2 Responses to Resources

  1. David says:

    Reading your story through this blog is truly an inspiration. I don’t know how I stumbled upon it, but I love your honesty and your courage and I am sure that you have helped so many other people. Keep doing what you’re doing!

    • mswestfall says:

      David ~ thank you for your kind and thoughtful comment. It’s interesting how we find each other’s blogs, whatever the case, I sure am glad you found mine and I am looking forward to reading yours! Please visit when you can! Wishing you the best!

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