“The most important thing in illness is never to lose heart.” ~Nikolai Lenin
While seeing Dr. P. in Philadelphia, he referred me to his good friend and colleague in Virginia whom he thought I should begin seeing for the MRSA in my sinus cavity. After driving to Philadelphia several times, my husband and I felt he was probably right. We met with Dr. H. after he received my medical records from Dr. P. — he knew he was dealing with MRSA and was going to have a tough fight on his hands.
While I believe everything happens for a reason, at about the same time, I scheduled an appointment to see an endocrinologist, but ended up going to the wrong location. When I contacted the main office (since there was no one at the office where I was that particular day), the receptionist indicated I was supposed to be at the other location. To reschedule would take months; however, she could get me an appointment with Dr. U. (who was new to the practice) the following week.
The next week my husband drove me to what was supposed to be a 45-minute appointment that lasted two hours — Dr. U. continued my appointment through his lunch hour and was genuinely concerned with my health. I shared photographs of myself from just two years prior and he combed through my medical records as if he was studying for an exam.
Dr. U. immediately changed my thyroid medication, which corrected my heart fluttering problem almost immediately. I had been in the ICU for three days a few weeks prior due to an A-fib and fluttering problem, despite the fact I was seeing another endocrinologist. He felt I was on the wrong thyroid medication and an incorrect dosage. Following extensive blood work, Dr. U. diagnosed me with Cushing’s Syndrome and began a regimen to detox my body from the overuse of steroids. I had to stop my current doctors from using steroids as part of my pain management treatment for my spinal cord injury, Cervical Dystonia and various other neurological problems, as well as for the treatment of MRSA. I was receiving steroid injections in my neck, lower back, and was given prednisone to help manage the inflammation in my sinuses and spinal cord. I guess you could say my body, or I was addicted to steroids in one way or another.
Along with Cushing’s, Dr. U. also informed me I was diabetic. I don’t think I will forget the moment I heard those words. I knew I was overweight and had a family history (my paternal grandmother suffered from diabetes), but I wasn’t prepared to hear those words. And, I had seen at least 12 doctors and been in the hospital and NO ONE had noticed — something is seriously flawed with our medical system for no one to have noticed. However, I began taking medication for type two diabetes. Personally, I felt as if I had never been more of a failure. For months it seemed as if I was completing every type of medical test available; however, each test came back with some rather unique results and I learned more about the damage done from medication, steroids, being an untreated diabetic for several years, an abundance of yeast, and a host of other problems.
I was also seeing Dr. H. who was beginning a unique treatment for MRSA. I had taken numerous antibiotics that the swab results indicated were MRSA- resistant. Unfortunately, none worked. I also completed a course of a $6,000 antibiotic not leaving the house for three weeks. While taking the medication I literally felt as if my body was shutting down. If my liver wasn’t hurting, my gallbladder was aching and part of the time I didn’t know if my digestion system was working. If my side wasn’t hurting, my back ached to the point where I couldn’t stand straight. Those three weeks were also spent on two other medications just so I could keep the antibiotic in my body in hopes of getting rid of the MRSA. Sadly once again, that antibiotic didn’t get rid of MRSA, but I knew it had done damage I would have to deal with later. In fact, just two months ago I had to have my gallbladder removed and I know it’s from the damage done from this medication.
Dr. H., my husband and I had a heart-to-heart conversation about next steps. We knew exactly where the MRSA was — in my left frontal sinus cavity. Dr. H. thought I needed to have a stronger antibiotic ointment injected directly into the frontal sinus cavity every other week. And, so I did, every other Monday for five months. While it was an uncomfortable procedure, I thought this along with another oral antibiotic taken daily as well as twice daily nasal rinses was going to finally cure me of MRSA.
After five months, Dr. H. felt I wasn’t showing the progress needed. Following another swab and a long talk, Dr. H. decided to discuss next steps. We decided on two options: inject a controversial medication much like the one he had used, but it came with risky side effects, including hearing loss or a constant ringing in the ears. Or, he could perform Frontal Obliteration Surgery, where he would make a cut from ear to ear until the frontal bone is exposed and enter the frontal sinus cavities so he could remove the outer layer of the frontal bone. The cavities’ mucous membranes and diseased tissues are then removed with a drill and the cavities are filled with fat (taken from the patient — I was hoping it would be from my thighs). The passages to the nose are permanently plugged, and the frontal sinuses no longer function. The risk is permanent nerve damage to the forehead among many others, including loss of eye sight, brain damage, etc.
As you can imagine, before leaving the hospital, my husband and I decided on option one. I had a baseline hearing test completed and began the new treatment. If this one didn’t work, I would have the surgery. The MRSA was too close to my brain and was now spreading into my bloodstream.
Following six months of this treatment every other Monday morning, a daily antibiotic and continued nasal rinses, a lot of prayer, improved health with the support of both Drs. H. and U., I am happy and very proud to report at my last appointment Dr. H. believes I am MRSA free! In fact, he doesn’t see me, or I don’t see him, for another two months. I am no longer on medication for MRSA, but continue my daily nasal rinses. While I may not be 100 percent out of the MRSA-woods…he has treated 30 other patients like me and 29 patients have not had a recurrence of MRSA — I hope to make it a perfect 30 (once he has treated 50 patients with this protocol Dr. H. will go public with the results). I have also lost 80 pounds and am on my way to becoming non-diabetic and being cured of Cushing’s.
While I still have work to do, I know I am not alone and I thank God for sending these two wonderful doctors into my life. While Dr. Liar took away parts of my life — Drs. H. and U. have given me my life back in more ways than they will know. I am sharing my story in hopes of making someone else’s life better. And, in some small way if my story prevents someone else from going through what I did then it was worth the journey. I am healthier, wiser, I have grown closer to God, have a better appreciation for my body, learned more about myself, others and more importantly, I appreciate each and every day I am given.
©My Unplanned Life and www.shakinguplife.wordpress.com. 2012.